Some days are almost more than I can bare. Pyper has had a hard couple of days. Trying to figure out her feeds has been so hard on her little tummy. She cries most the time she is awake. We have decided to go ahead and put a g tube in. The nose tube is gagging her constantly. It hurts so bad to sit here and feel like there is nothing I can do to make her feel better. Her eyes are still stuck to the right but she can bring them to the middle if she is really concentrating. She grinds her teeth so bad its scary! Still no talking or any kind of facial expression. I miss her so bad its a pain I cant describe. Why does a sweet little 3 year old have to go thru this?? Honestly the only thing getting me from minute to minute is faith in our Heavenly Father. She still goes to PT pain and all. She is starting to lift her head a tiny bit on her own. She tries so so hard my heart swells with pride as I watch her. The amazing PT therapist says there is a little girl in there trying to get out :) love our sweet little Pyper!!! She is a true superhero ballerina.
Posted on: Thu, 02 Oct 2014 03:29:34 +0000
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