Spending my morning in bed with the wee lady. Things have been a little difficult of late, hence the lack of updates. Ellsa seems very unstable at the moment, there seems to be a lot of activity going on with her, lots of jolts and jumps... she has been crying a lot also, like proper screams. We have an appointment at the Royal on Monday, and to say we are nervous is an understatement... We just want an answer now, this whole not knowing is killing us. The physios came to see her yesterday and they seemed very pleased with the progress she has been making. Sadly though it seems seizure activity is back on the rise, we are having 6 or 7 a day and a few tonic stiffenings in between. We still need all your support and help, we still need your donations, please consider giving, please consider giving Ellsa a chance. To donate as always you can go to justgiving/hope4ellsa or you can text HFEA99 followed by the amount you want to donate £1,£2,£3,£4,£5,£10,£20 to 70070... Thank you... #hope4ellsa
Posted on: Thu, 04 Dec 2014 09:36:57 +0000