Surely there must be a better way. Asher has a very rare - TopicsExpress



          

Surely there must be a better way. Asher has a very rare chromosome microduplication and weve spent 12 months of persistent phone calls, GP referrals, and patient repeated explanations to every intake line around trying to access publicly funded early intervention services. I pride myself in navigating complex systems but this has been ridiculous. In the meantime weve paid our way privately but Ive been frustrated that surely given his rare chromosome disorder, prematurity and speech and motor delays we should be easy candidates for public health/disability services. I finally gave up last week and told an intake worker at a government department that I was tired of all of this and wasnt going to jump through any more hoops and would write a letter to the Minister and our local member explaining how hard it had been to access early intervention services. Within a day we have appointments booked for next week. What a broken, overstretched system. Gaaaah. ~ B
Posted on: Mon, 13 Oct 2014 11:38:11 +0000

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