Thank you all for the concern and prayers for Timmy. He knocked it out of the park on the evaluation (DAS II). Dr. Stein calls him her little professor and Dr. Timmy. Timmys scores are too high for the IT trial but he is being monitored as part of a natural history study which is two years long. This was his 12 month visit. I had a conversation with Dr. Muenzer about the fact that Timmy might be performing on par with the cognitive test but he cant apply it in everyday situations. We are to continue with Occupational Therapy for those issues - they do not seem to be exclusive to Hunter Syndrome (MPS II). Thank you again for the prayers and support!
Posted on: Thu, 31 Jul 2014 00:52:23 +0000
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