Thank you all for the good luck wishes... Im leaving it all in gods hands... Many of you know that Im a cancer survivor, and a selected few know that I battle a autoimmune/ neuromuscular disorder... I have been for 7 years... Ive done every known treatment for my disease called stiff person syndrome... There is no cure only treatment to keep the symptoms at bay... Ive exhausted all treatment options that have left me with multiple side effects that makes it hard to cope with... I will start yet another option, which has successfully worked on a few out people that have been Dx with this disease... My treatment starts in two weeks... Its called IVIG immunoglobulin... Its to long to explain about my disease, but theres a web site that I have shared my story, as well as others... stiffpersonsyndrome.net... Ive been a part of that group since 2009... Im sharing this for the first time because I feel that ppl need to know it exist so more studies and options can be made available... It could happen to you or someone you love... My story is under sps stories and click Joannes Story... God bless you all for your prayers... I will continue to live life as I have been... Love yall...
Posted on: Wed, 29 Oct 2014 20:50:49 +0000