Thank you for doing this challenge Melissa!! Mastocytosis is an orphan disease(meaning less than 200,000 people have been diagnosed with it). Mastocytosis has NO federal funding for research like other diseases do, so we are in desperate need to learn more about this disease that is only rare because it is misdiagnosed for other more common diseases.It is privately funded so we solely depend on kind and generous people for research funding and the people who volunteer at TMSforacure.org. Please take a moment to watch the video and maybe you will want to help us spread awareness and donate to a wonderful cause that not only sheds light on mast cell disorders but sheds light on other diseases as well.Mastocytosis and Mast Cell Activation Syndrome affect all systems, organs and tissues of the body. In particular, skin, liver, spleen, lymph nodes, bones and bone marrow, lungs, gastrointestinal system, eyes and blood are the most documented as adversely impacted by these diseases.It can cause spontaneous shock in some and damaged organs and is life threatening. Mastocytosis is defined as a myeloproliferative neoplasm (mpn) stem cell disorder, caused by an over-abundance of good immune system cells called mast cells and the release of mast cell mediators(their contents). These cells may also be misshapen or defective, further contributing to their dysfunction. Mastocytosis presents in cutaneous (skin) and systemic (internal) forms. Patients of all ages and genders may present with one or both forms of the disease. Research exists but much more needs to be done to further identify and understand the less studied effects of mast cell disorders on the heart, brain and the female reproductive system. We need your help! Please consider taking the pie in the face challenge to help us find a cure!! Please visit tmsforacure.org for more information. Thank you friends!
Posted on: Sat, 23 Aug 2014 03:16:37 +0000
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