Thank you to everyone for providing information about resources to help with our current predicament with Eva loosing her SSI and MediCal. The regional center (CVRC) explained that Eva doesnt qualify for institutionally deemed MediCal as she doesnt meet the criteria for the Lanterman Developmental Disabilities Services Act as they cant assess if shell be eligible for regional center services after age 3. She doesnt have obvious signs of intellectual disabilities, or obvious signs of a disability such as autism, cerebral palsy, or such. That was our last resource for being able to keep MediCal in addition to our private insurance. As a result of losing MediCal she will also lose California Childrens Services (CCS) because she has to have MediCal to have CCS (shell qualify again if her medical expenses exceed 20% of our income). As a result of losing CCS, we will not likely be able to continue to receive services from Childrens Hospitals High Risk Infant Clinic as CCS is a requirement. Im still waiting to find out about that, as well as whether shell be able to continue to be seen by the Childrens Hospital pulmonologist (lungs), gastroenterologist (intestines), optometrist, occupational therapist, and speech pathologist as she was able to do for the last four months when she had MediCal. Thank you for the recommended resources to assist with the Synagis medication. I am enthusiastic that one of these resources might help. I was told that we have to wait until Friday to find out if any of those programs will work with us because her MediCal is active until the end of this month. They cant process an aid request until MediCal is inactive. It sounds like we might be able to obtain assistance with her share of cost and co-pay, which will likely run $750+ in January alone. That assistance will certainly be welcome. We are very grateful for the advice and resources everyone has been providing. To be perfectly honest the loss of SSI was a big blow as so many other services were linked to it. That is tempered by the fact that there are so many wonderful people helping us find our way. I count these challenges as mini-blessings as they are a reminder that nearly 10 months ago a doctor told us our daughter wouldnt survive but tomorrow night well be ringing in a new year with her (hopefully well be asleep when that happens).
Posted on: Wed, 31 Dec 2014 00:07:01 +0000
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