The Heaters Heroes Event was amazing today and we were thrilled - TopicsExpress



          

The Heaters Heroes Event was amazing today and we were thrilled that Mike Strange honoured Abbi and her battle with Cystinosis. Her story was read and we started to walk our lap in honour of Abbi. Friends, Family... we all walked behind Abbi and she was so proud to receive all the applauds, then out of nowhere she started to run the lap and didnt look back, we were all so proud from everything she has to deal with on a regular basis she was going to show everyone that she was a regular 8 year old girl :) Unfortunately Abbi has a lot of behind the scene battles and tonight she struggles with keeping medication and water down as today she over did it. Im sure she will bounce back as she always does but its just another reminder that in life we take a lot for granted - Please continue to Support Cystinosis Research Foundation
Posted on: Sun, 10 Aug 2014 01:01:01 +0000

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