The Invest in ME Research Advisory Board Invest in ME supports high quality, biomedical research into myalgic encephalomyelitis (ME). Following this years research meetings and in order to ensure that we build a strategy of high-quality biomedical research for the future IiME have decided to form an Advisory Board of top researchers to assist us in planning and building a strategy of high quality biomedical research into ME. We hope this will allow more focus on research required to find the pathomechanism of the disease. Our advisory Board consists of the following members - Dr Ian Gibson Former Dean of Biological Sciences, UEA Professor Jonathan Edwards Emeritus Professor of Connective Tissue Medicine University College London (UCL) Dr Jo Cambridge Senior Lecturer UCL Professor Angela Vincent Emeritus Professor of Neuroimmunology, University of Oxford Professor Tom Wileman Professor of Infection & Immunity Professor Simon Carding Leader, Gut Health and Food Safety Programme Institute of Food Research, Norwich Research Park The first advisory board meeting was held on Thursday 28 August 2014 in London. The meeting discussed what we know about ME so far, the progress of the UCL B cell study and UEA gut microbiota research and the aims of these projects in, for example, identifying sub groups of patients and how the research Invest in ME is funding at the moment can be tied together to complement each other. There was consensus that the most difficult part for researchers is to find correctly diagnosed patients and they rely on clinicians to do the selection process. It was discussed how there are probably very many low lying patients who have this disease but are outside of the healthcare system - something IiME has pointed out many times in the past - and it would be useful to identify those patients and enable them to be part of research efforts. Together we are working on establishing the correct and unbiased science to be involved in ME research. A number of key areas and possible projects have already been identified. We shall be working together with our board over the coming months to initiate these projects. Our supporters have made wonderful efforts to enable a solid base of research to be made possible and we welcome support for our plans. We will publicise more on these projects as soon as we are able to do so. We believe our approach to initiating biomedical research into ME is paying off and feel very strongly that the key elements of a correct and productive strategy of research into ME are or have been created.
Posted on: Tue, 02 Sep 2014 08:04:41 +0000
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