The Reason “We Walk”… We walk today for those children, who don’t yet know their fate; The word Chiari they’ll one day learn, & also learn to hate; We walk this walk for mothers, who try to hide their pain; & try to teach their children how to dance beneath their rain; We’ll walk now for the parents, who feel completely stressed; While at their child’s bedside feeling totally helpless. We walk for all of the siblings, who have to act grown up; & sometimes take a second place, when times are really tough. We walk these steps for patients, who are told that they “look fine”; Despite the meds they have to take, to get them thru that time; We walk for the many who suffer, in silence still today; Being told Chiari is so rare, thinking alone they’ll have to stay; We walk so at our next appt, we won’t have to spell the word; Because in Shelby Township, MI, Chiari’s something they’ve now heard; We walk for you who’ve loved us, even thru the hurt; & joined us here today to wear, your Chiari Walk T-shirt; Mostly we walk today these steps, holding another’s hand; & will continue to walk these steps, simply because we can; We walk for the volunteers. Sponsors, donors and our friends; Who’ve made today all possible & are with us til the end; We walk because we’re tired, of having to hide what’s wrong; We need better treatment options. We’ve been guinea pigs for far too long. We’ll walk because I want better, for my own daughter & my son; So God forbid, they EVER hear, you have Arnold Chiari One; We’ve organized this for you, because our families are ok; With missing us for months to plan this one September day; We’ve now walked five years together, we hope to meet again; We’ve shared our stories, broke bread & met ~new Chiari Friends; We’ll walk because you hold our hands, to catch us if we fall; We’ll continue to meet here yearly til, we Conquer Chiari …once & for all!
Posted on: Sun, 22 Sep 2013 18:54:46 +0000