The support and prayers for little Ally and her family have been - TopicsExpress



          

The support and prayers for little Ally and her family have been outstanding! :) In a world that seems so broken at times, the outpouring of love for Ally is a beautiful thing to watch – truly a miracle. We do not know the final cost of Ally’s treatment, as her treatment plan is constantly changing. What we do know is that this will be at least a two year process. That they will have weekly visits to Kansas City (3 hours from their home) for at least 6 months. That this diagnosis, combined with Baby Brady’s arrival in March, will keep Carly out of work for an undetermined amount of time, and that Brian also has to take time off of work. The fact that we’ve raised over $21,000 brings Carly to tears every time they talk about it. We’ve given them hope, and we’ve made them feel loved. They are not going to raise the monetary goal any more, as the real goal is health and happiness for Ally...but if you feel lead, please continue to support this family in whatever way you can. The road ahead will not be an easy one. Ally is out of ICU and into a room in the oncology ward! She will have much more freedom here as she wont be constantly monitored and poked at like she was in the PICU. Allys new room accommodate Carly and Brian, so they will not need to go to the Ronald McDonald House. This is another blessing, as neither one of them want to leave her side. She took a bath yesterday, and sat on the potty…these seemingly small acts are huge in gaining back her independence, and making her feel more like herself. Ally received her chemo yesterday and thankfully, had no allergic reactions. Before her treatment, Carly and Brian received updated labs stating that her white blood cell count went down to 2,000, and that her uric acid count had also decreased. The fact that her uric acid continues to decrease reaffirms that dialysis is not needed at this time, and we are hopeful that it won’t be needed at all. The fact that her white blood cell count is down to 2,000 shows that her treatment regimen is doing its job and killing cancer cells. While this is a great thing, her “good” white blood cells are also being eliminated, making her susceptible to infections. We are anxiously awaiting new lab results to see her continuing progression after chemotherapy. Ally receives steroid treatments as a part of her chemotherapy. They changed her steroid regimen to include a new and improved steroid specific to kids ages 12 and under. An echocardiogram has been ordered, as well as another spinal tap. We’ll keep you posted on those results. They gave Ally hydro condone to relieve some of her pain, and this gave her the strength to spend 15 minutes in the play room during craft time. She also wanted to talk to a doctor about getting some pineapple. After getting her pineapple, she wanted to see the doctor to thank her. These little social interactions show much progress. Please keep the prayers coming. And continue to support this family in anyway you can. :) God bless all of you. #AllysArmy :)
Posted on: Wed, 07 Jan 2015 18:14:26 +0000

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