The worst thing about this disease is that I dont know how bad I - TopicsExpress



          

The worst thing about this disease is that I dont know how bad I will get and that really scares me. It is hard to deal with at times.New things happen everyday. Things I have no control over. I also feel horrible that my husband and my son have to watch me deteriorate. I feel like I have trapped my husband in to taking care of me for the rest of my life. I know it is not my fault but I still feel guilty anyway. I think about what is going to happen to me every minute of every day. How much time do I have left? How much longer am I going to be me? I here time just clicking away. People tell me that everything is going to be ok but my doctors tell me I will get worse. This is my outlet. I know it is depressing for you guys to here this but I am depressed about it and angry and afraid of the unknown. I am tired of people not caring, not my friends on here or my family but other people who give me stupid looks when I am out somewhere! I had one women tell me I should be ashamed of myself for using the motorized cart at Wal-Mart. I had people tell me and my family that they were going to do a benefit or fundraiser for me and they never did!! I would not wish this on anyone. Believe me this is the hardest thing I have ever dealt with in my life and it gets harder every day!
Posted on: Fri, 07 Nov 2014 09:39:32 +0000

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