This Survivor was going to do posts then share how things went for her very first Survivor Support Group Meeting, but I changed my mind. I feel I need to get this out first, prior to enjoying the day. I was disturbed by some ways that folks were referred to as. One person using a wheel chair as a tool to assist them to be as independent at possible, was referred to by the Non-Survivor in the room as wheel chair bound, and that lit my fuse. She is not glued to this tool, she most likely sleeps in bed without the dang chair. She doesnt have the chair in the tub with her, and she probably at home, gets herself out when she wants, to sit or lay in her favorite chair to relax, may even get around home without the chair. (I saw her hands & arms were very active) Another survivor referred to a spouse as a Caregiver (that is a fact, of love) and as a Caretaker (that word set me off!) A caretaker is a someone who is paid to take care of someone, even if they care for that person. A Caregiver is someone who gives of themselves to care for another, no reimbursement. Gives Care. The Non-Survivor in the room, called brain injury the Silent Injury, and I believe that there is nothing silent in this dang injury. Its the Silent Epidemic (look at the Statistics), its the Hidden Injury, as even they made the comment that we all appear normal. The Non-Survivor brought up Neuroplasticity, as something new! How many of us survivors know this is something that is in no way new, its been known for many many years now. Our brains continue to grow and make new connections as long as there is a breath in our bodies. I was delighted to see three married couples, devoted and so caring. I loved that with all my heart. One young couple, with children, were amazing. Severe TBI, cant work, but one spouse said that the other, who is the survivor, cooks better now than ever before, and the survivor said they are happier now than ever before. Two couples were Seniors, devoted and so caring. I heard words like frustration out of both of the couples, and then pride from the caregivers about things their spouse is able to do now! The jury is still out about if its something that will last for me, Ill give it 2 more gos before I decide. Please understand these are just my own opinions, and everyone has the right to say or think what they want & feel. Its just me...
Posted on: Fri, 17 Oct 2014 15:20:48 +0000
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