This is SMA. And this is a travesty. While we usually post about - TopicsExpress

This is SMA. And this is a travesty. While we usually post about the good and inspiring, our This is SMA. series was started to highlight the reality of this disease. Some days grief is engulfing. Some days NEVER GIVE UP. means just getting through the day. We have never felt comfortable when people say things like, You are stronger than I am..., because we are no different than other parents and, like most, were completely unprepared for SMA. What SMA families really need is support -- from friends and family and professionals. With the proper support, this tragedy may have never happened.

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