This is a very graphic video, but it has been my life. Diagnosed at the age of 34, and if you can watch the entire video, you will see the kinds of nosebleeds that I had. I know some of the people pictured having bleeds. No, I do not get them anymore because I had my nose closed off because of the bleeds. However, it is my liver now that is affected. Once again...once you get past the explanation of what HHT is, it begins to get graphic, but very, very true and a fact of life. Now, you can see why we are trying to make HHT aware to doctors and the politicians so we can be funded for research to find a cure. So many rare deceases and disorders are funded, but we are not. There are more people with HHT than there is with pulmonary fibrosis and they get funded in several areas. If you are able to watch the entire video, please let me know what you think. This is why I am going to the Cleveland Clinic now, for AVMS on my liver, which indeed is life threatening if not for the treatments that I am now getting, not covered by insurance because they dont think it is necessary. Thank you for watching. REPEAT: VERY GRAPHIC AFTER THE EXPLANATION OF HHT.
Posted on: Thu, 16 Oct 2014 05:50:41 +0000
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