This is possibly the best account of what it is like to live with - TopicsExpress

This is possibly the best account of what it is like to live with chronic illness Ive ever read. It felt like this woman was describing my life. If you want to understand, truly, what its like to be chronically ill, please read this. Naomi Woddis Jane Waterman Janet Fine Chris Dean Alisa Simmons-Snapp Catherine Gutierrez Michael Bentley - wanted you to see this. *** A common symptom of autoimmune diseases is debilitating fatigue. Complaining of fatigue sounds like moral weakness; in New York City, tired is normal. But autoimmune fatigue is different from a sleep-deprived person’s exhaustion. The worst part of my fatigue, the one I couldn’t explain to anyone—I knew I’d seem crazy—was the loss of an intact sense of self. It wasn’t just that I suffered brain fog (a usual autoimmune symptom); and it wasn’t just the “loss of self” that sociologists talk about in connection with chronic illness, where everything you know about yourself disappears, and you have to build a different life. It was that I no longer had the sense that I was a distinct person.

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