This is the type of MS that I was diagnosed with late 2011 & in - TopicsExpress

This is the type of MS that I was diagnosed with late 2011 & in those 3 years I went from walking, a cane, a walker, and now a fully equipped wheelchair (neck rest, lumbar support, air cushion and curved custom back rest/support) which Im still struggling with how I look in it...I went from eating whenever I wanted to eating only soft foods & eating under supervision since we just found out I have limited use of my tounge & issues swallowing and having to see a speech pathologist to help me adjust to my new reality ... This interview and movie shows the truth behind PPMS (Primary Progressive Multiple Sclerosis) and expresses the real frustration as things just keep progressing & the reality of whats ahead...watch the short interview and support the Primary a Progressive MS Alliance now in place for focusing on the 10% of us with this MS. Up until recently all the focus on developing medication and treatments have been on RMS & RRMS - FYI this post is in NO WAY for sympathy, empathy or seeking attention. Its 100% shared as education and bringing awareness to the puzzle that is PPMS. Thanks for your support my friends. I appreciate your time & desire to walk for me (with me) on this difficult journey that is my daily lifes struggle. I love you all.

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