This is what my babies looked like when they were born prematurely in 2004 and we did not have the technology to save them in Egypt, a tragic part of Basil and Is history that ultimately led us to immigrate to the US...but it was not only the lack of needed tech that lead to their sad passing, it was also the lack of responsibility of our medical system and the inability to keep abreast with modern medical protocols and safety practices. They actually suffered to a great extent because of this failure in the system and died a slow and painful death due to the gross negligence of the gynecologist, hospital staff,NICU pediatrician and staff. People ask me why I have such loyalty to the US and I consider it my homeland too...well, following this pregnancy was Ferriss pregnancy and at 6 months gestation I exhibited the same problems I had with the twins. Basil and I decided to leave for New York though it would take all of our savings and meant that Basil would be working remotely for a few months and may risk losing his job. We were covered by the US governments medical system completely within weeks of our arrival and 5 doctors were assigned to my case as well as a high risk team that saw Faroosa through till her was full term. When Egyptians, especially those who live abroad, criticize the Hep C and Aids virus device (engineered by the Egyptian armed forces) are labeled as traitors and cynics what their fellow citizens need to understand is that they expect more proof and professionalism to believe (based on a lifetime of experience) that our medical system has taken the strides forward that are needed at these modern times. In the case of premies here in the US, even when absolutely nothing can be done, babies are given a high dose of morphine, so they do not suffer, and given to their parents to hold till they pass peacefully. Basil and I were denied that and made to watch them pass, through glass barriers beyond our reach. Only I was allowed to be inside the NICU and touch them, and till today he regrets this deeply. Even after they passed the sheikh who did their funeral prep told Basil that it was preferable that he did not hold them until they were covered in their shrouds. Every year at their birthday I celebrate by donating to the Childrens Miracle Network that gives money to premie research and I encourage my friends to donate to their favorite charities as birthday gifts to May and Layla. Europe and America combined have put forward the majority of medicines and equipment that save us, our parents and our children every day, and we need to fight hard to be part of this great contribution and carry our weight globally so to speak. This article is the front page of TIMES magazine this month and I have been walking around with it all day, because I have no pictures of the twins because they wouldnt allow us to do it while they were alive and we did not want to photograph them after they passed. People with experiences like mine, need to hear the right kind of talk coming from a future president that reflect that he understands the steps that need to be taken to actually create change within the Egyptian economy, health care and the educational system, to change the way we feel in our hearts and minds about so many things. I know that everyone has their own story, and I always learn from hearing them and actually like facebook because of this...today this article and remembering the twins and their short journey made me want to share a bit of mine:) time/108708/the-cutting-edge-medicine-saving-preemies/
Posted on: Mon, 26 May 2014 04:01:50 +0000
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