This kid is crazy. Playing a quick game of freeze with his nurse. The playroom and library are both closed today. :( which calls for us to get creative in his room. Still trying to get his feeds figured out. He is doing great on the adjustments made so far. It does look like we will be coming back up here every 2 weeks vs monthly. Till transplant so they can closely monitor his nutrition. Brayden also is smiling again...yea... that makes this momma happy because everything we are doing is so much more worth it when we can see his smile while he is fighting this fight. Braydens strength is beyond anything I have ever seen.
Posted on: Mon, 19 Jan 2015 21:09:12 +0000
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