This was Dale, idea: Dear Mr. Wigmans, You sent an email to the National Institutes of Health about visual snow syndrome, which was forwarded to the Genetic and Rare Diseases (GARD) Information Center. You want to spread awareness for this condition and establish funding for medical research. Thank you for letting us know about this condition. Based on your suggestion, we have added it to our list of rare diseases. We have also created a new webpage for this condition that contains resources. rarediseases.info.nih.gov/gard/12062/visual-snow-syndrome/resources/1 You can find more information on how to obtain NIH funding for research from the NIH Office of Extramural Research: grants.nih.gov/grants/oer.htm GARD is currently conducting a Customer Satisfaction survey, and we would love to hear from you. You will be receiving a separate email later today containing the survey link and information about the survey. We hope you will choose to participate. Sincerely, Michelle Greenwood Information Specialist The Genetic and Rare Diseases (GARD) Information Center is funded by two parts of the National Institutes of Health (NIH): the National Center for Advancing Translational Sciences Office of Rare Diseases Research (NCATS-ORDR) and the National Human Genome Research Institute (NHGRI). The GARD Information Center provides the public with access to current, reliable, and easy to understand information about rare or genetic diseases in English or Spanish. Information Specialists are available by phone Monday through Friday, 12:00 p.m. to 6:00 p.m. Eastern time (excluding Federal holidays).
Posted on: Thu, 17 Apr 2014 15:37:25 +0000
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