This will be my theme song from now until the kids get healthy. If you see me in the fetal position in the corner, its because I just need to breathe. Most everybody gets to see me with my brave face though. Were starting genetic testing for Nathan and Evelynn for a rare disease called Schwachman-Diamond Syndrome, and learning how to handle Evelynns sensory processing disorder. The house will never be 100% clean, laundry will never be 100% done, and we may eat out more than I make homemade meals some weeks, but were all living, breathing, happy, and healthier than some! Were also till trying to raise enough money to go to the neutropenia conference in July so we can learn as much about this genetic disorder as we possibly can
Posted on: Fri, 20 Jun 2014 03:38:23 +0000
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