Thoughts for today: 1) I feel so absolutely terrible for my baby. No one deserves to go through this... Especially him... Hes the sweetest kid youll ever meet! 2) Im so absolutely proud of my baby... And though he doesnt deserve it... He handles it amazingly! 3) Most of the time I feel that I handle our situation well too... But not right now... I feel that we have wasted the entire last year of our lives working so hard to get nowhere... I feel cheated by our allergists who failed to mention that being on these steroids could affect his scope results. We have wasted time, money, and an unbelievable amount of energy working so hard to be exactly where we started. I remember walking the halls of Cardinal Glennon last summer dreaming about where we would be a year into this elemental diet... I thought wed have 3-4 foods by now...and food wise...we are back at square one... 4) Health wise, we are not... In time his GI tract will heal again and well start again fresh. He has gained 5 lbs and grown a couple inches since January. This is a huge PLUS and I believe this is from stopping the steroids. He had basically stopped growing entirely for a while, while on them. 5) This all comes at a time when Cash is understanding things way more and asking lots of questions about why we all can eat and he cant... Its going to be extra hard at this point to go back to no food again. 6) Tripp started squash a week ago and in the past 2 days has been vomiting non-stop... While Cash was in his scope I looked at Tripp as he was in a reflux/vomiting episode and I had the most desperate and sinking feeling...I cant even mentally go there right now. 7) I dont have the answers to why a lot of these things are happening, but I do know that my God hasnt left me...just because I cant see him right now doesnt mean he isnt there. I cant except his blessings and not except the trials he gives us. I will continue to look to him for comfort and strength and call on him for the answers we need! I will continue to honor, love, and praise him! I also want to continue to ask you all for prayers... We could sure use them!
Posted on: Wed, 14 May 2014 22:48:53 +0000
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