Today Im journeying down to say goodbye to the beautiful Samuel - TopicsExpress

Today Im journeying down to say goodbye to the beautiful Samuel Monk. When you have a child with a rare and complex condition you search to find people in a similar situation to connect with, even if they have different syndromes. I found Zoe Monk ( Samuels fund) and Emma Murphy ( from happy little hugh) a long time ago now. You support each other through tough times, but because of the distance between you, and your childs needs, it can be hard to physically meet. The Internet can be a dark and scary place, but for families like ours it provides a network of people for support, advice and understanding. Shine bright Samuel you will be missed xxx bournemouthecho.co.uk/NEWS/11641490._The_brightest_star_in_the_sky________Brave_youngster_Samuel_loses_fight_against_rare_genetic_condition/?action=complain&cid=13464209 trickycustomer

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