Today has been a busy day here again! The girls had their lung function tests this morning, ( which their numbers are up on) then they had dressing change where their Picc lines are ( I felt so bad they bawled the entire time cuz it hurt ripping it off) then they had blood draws in the hand (which they did awesome didnt even phase them) on top of the doctors coming in and having the lions players visit and doing physical therapy and their vest and breathing treatments and the school teacher that comes in! Always a busy day here, but today had a few extra obstacles! The girls overall I feel are doing well but they still cant figure out why the cough is still there and seems to be getting worse ;( Tomorrow they both go for an MRI which they have to be sedated for, ( which worries this momma) to check on the facial weakness on the right side to make sure that it is Bells Paulsy ( which they were diagnosed with at 3 months) and not something else going on! My poor girls have been through so much! I feel so bad for them, makes me so sad! They definetly are little super heroes in my eyes and are troopers for everything they have to go through!
Posted on: Wed, 19 Nov 2014 01:32:42 +0000
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