Today is September 17th – the 17th day of Childhood Cancer Awareness month. Today I want to honor Matthew LaRocca. Matt’s journey with childhood cancer began in November of 2009 when he was 11 years old and in the fifth grade. His family was living in Florida, and his parents took him in for an MRI to confirm a sinus infection. Instead, the doctor looked at Matt and said, “Buddy, you have a pretty big brain tumor in there.” The LaRoccas’ lives changed forever in that moment. The tumor was over 5 cm, and the doctors thought it had been there from birth. That would’ve explained some minor issues Matt had dealt with for years for which they never had answers. Matt had brain surgery on November 16, 2009, but the surgeon was only able to remove a small piece of the tumor for a biopsy. The tumor was a Ganglioglioma and it was benign. However, it was growing and it was located on Matt’s brain stem, and that made it very dangerous. The brain stem controls major bodily functions such as breathing and heart rate. Amazingly, Matt returned to school within a week of surgery. Matt’s parents, Dean and Kim, left no stone unturned as they sought out the best treatment for Matt. They sent Matt’s records and scans to doctors throughout the country to get opinions to help them determine what to do. Matt was started on a chemo regimen to hopefully shrink the tumor. Meantime, the family realized that they couldn’t make the journey alone. In addition to Matt, they had an older son, Jordan (15 at the time), a daughter, Alyssa (14 at the time), and then Ryan, age 5, who was the youngest of the 4 siblings. Since so much of their extended family lived in Nashville, they decided to move back home to Tennessee. There, they would not only have a large support system of friends and family, but they’d have Vanderbilt Children’s Hospital as well. Once they were back in Nashville, Matt continued his chemo while Dean and Kim continued their search for Matt’s best treatment options. Matt had varied interests. One thing that Matt enjoyed was cooking. He had the idea that he would start making and selling snickerdoodles, 7-layer bars and “crazy croutons.” He named his made-from-scratch goodies “Miracle Matt’s Munchies.” He often took treats for the nurses and other patients when he went to clinic, and they looked forward to his homemade yummies. Matt even had a cookbook printed that was sold to help raise money for his treatment. I was happy that I was able to buy one. Another of Matt’s interests was humor. His family started a website: braintumorhumor. Leave it to Matt to find humor in even the direst circumstances. Matt loved Legos. He enjoyed putting together Lego kits and creating designs with them. It was good therapy, both emotionally and physically. One day Matt said, “Hey mom, you know how sometimes people send me a little money in the mail?” Kim replied, “Yes.” Matt continued, “Can you tell them to just send Legos instead?” The boy loved his Legos! Cold weather was something that Matt especially enjoyed, and so when he was offered a wish through the Make A Wish Foundation, he chose a cruise to Alaska. That trip was one the whole family will always remember. As Dean and Kim explored options, they unexpectedly were able to talk with Dr. Ben Carson at Johns Hopkins. Dr. Carson discussed Matt’s case with Dr. George Jallo – another doctor in his group and the top doctor in the country on brain stem tumors. Everything fell into place to the point that the LaRoccas felt assured that this was the path God wanted them to follow. They went to Baltimore to meet with Dr. Jallo who would perform the surgery. As they were leaving, Dr. Carson came in and said, “So this is Matthew LaRocca!” He told them the story of a little boy who had a tumor similar to Matt’s and how he had been given 6 months to live. He laughed and said, “That was 20 years ago and he is in college now.” Kim said that the look on Matt’s face was priceless – a mix of relief and shock. That trip gave them hope. Matt’s surgery to de-bulk the tumor was done by Dr. Jallo at Johns Hopkins in January 2011. Matt had been suffering for 16 months from violent hiccups because of the tumor, and the surgery finally gave him relief from that, too. Matt returned home and seemed to be doing well when, without warning, on April 6, 2011, his battle on earth ended. He was twelve. His mom wrote: “He won! Matt beat that cowardly brain tumor. While we are broken and void in heart, we are so thrilled that Matt is free to run again! Life will never be the same, but we are thankful for the battle he waged.” Today Matt’s family owns Main Street Toy Shoppe in downtown Franklin. In the store they have a wall dedicated to games and toys that Matt loved. They donate lots of Legos in Matt’s honor to help kids with brain tumors in their therapy. They also support Franklin 4 the Cure each year. The family is in the process of adopting an 8-year old son from China. Matt, you must be smiling down from heaven as you see how your family has continued your work to help others who are battling brain tumors. You taught us all lessons in treasuring life and helping others.
Posted on: Wed, 17 Sep 2014 12:17:05 +0000
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