Trying my hardest to take it slow today. Yesterday I had a really bad dystonic storm that lasted non stop all day. After having a few really good days it hit so hard in my legs that I couldnt do anything. James had walked to the store to get a few groceries we needed because he cannot drive the truck. I tried to wait for him to get back but couldnt and tried to get out of bed and get to the bathroom on my own. I didnt make it. Its really humbling when Im not even 50 and I have to resort to crawling on the floor because my legs decide they wont work. Whats funny is other people have no idea at all what I go through. They think because they see me one day ok that that is what every day is like when in reality Im probably only really good 1-2 days out of the week. They dont see the times my legs are twisted and contorted to positions you would never think they could go into. They dont see the hours I lay in bed in so much pain all I do is cry and beg someone to make it stop. They dont understand why James needs to be here with me when the storms hit so bad. I hate being the age I am and knowing that its only a matter of time before its depends and a wheelchair and a bib. I know whats coming in the future at least before you judge someone on their once or twice appearance you should also do your research and read about what their illness can do to them. I dare someone to walk in my shoes. No I dont because I wouldnt wish my illness on anyone even my worst enemy.
Posted on: Mon, 04 Nov 2013 22:33:42 +0000
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