Ugh. Can we go back to bed and try this Monday thing over again? Because I am just not liking how this one is going. All went well till we headed to clinic. Heading down I-277 only a few miles from our exit.Its foggy and misting, I look in the rearview mirror and it seemed more foggy/misty than it had been.....then I looked again and it was worse. My heart sank when I realized that it was smoke.ing from our car. ALOT of it! I jumped off the first exit I could and pulled into a parking lot. Smoke surrounding us and when I popped the hood I see it drenched in a red fluid. Thank GOD no fire (my first thought!) Called Brian (again THANKFULLY) he was off today and awake (works afternoon shift) so he could come get us off the side of the road and wait for the tow truck :( Got to clinic, platelets down AGAIN. And his ldh is higher again (could mean TMA is returning). Creatin is elevated again, but thankfully all gvh symptoms are improved. On that front we will be doing infliximab bi-weekly to try to get off of prednisone and see what other treatments are necessary to keep it in check. Dont want to rock the boat with Chris special thing rapidly approaching! (Sorry have to keep under wraps for now...cant wait to share!...just not yet :)) Brian got van towed to a car repair place nearby and again THANKFULLY its just a transmission hose and water pump and should be done this afternoon.Platelets 33k so we will be eagerly waiting to hear what they are on Thursday. Prayers for no more setbacks, forward movement and no health obstacles! ~Michelle
Posted on: Mon, 12 Jan 2015 19:30:46 +0000
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