Update, Roy Again. We believe we found some light at the extremely long tunnel that the family has been in. We got a fairly definitive diagnosis on Friday. Samples of spinal fluid were sent to Dallas yesterday and should provide the answer. It might take a week. I finally feel we finally hit the nail on the head. Its reported that she was a little stronger today. We created a care pages account for info, I hope its right?? It is: carepages/visit. Correct me please if its wrong. I will update the results as soon as I hear of them. Darci does have her ipad and is using it now, dont be alarmed if you get something that doesnt seem right. She is getting better with her aim but sometimes it gets the best of her. It will be a long, steady road to improvement.
Posted on: Mon, 29 Sep 2014 01:05:17 +0000