Update doctor came and did his rounds on samarah. And said next week there going take her off Cpap and try the vapor therm and see how she does. I asked if that was the next step to trying to get her home, he said she still has a ways to go they gotta make sure she with stands her feedings and the goal is to try to get home off oxygen but if she has to come home on some type oxygen it will be a manageable type for us to be able to take care of... So were heading in right direction. And the doctor told me... praise god, he said I made the right decison on fighting for her, he didnt think she make it and she not out the woods but shes a fighter and he didnt believe we wld make it to this point. So to get recognition is a huge step not just for samarah, but for all trisomy families and gives me hope for more doctors to open their eyes and see any trisomy diagnosis is not a death sentence with god, faith and belief anything is possible. And just maybe more doctors will have a better outlook....I can only hope and keep praying, thank u lord u are truly good
Posted on: Sat, 13 Sep 2014 18:51:21 +0000
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