Update on Nevaeh: Her hemangioma is fading in color but is measuring the exact same size as it did two months ago. The hemangioma thats on the inside of her eyelid is still trying to grow and this is why she is having all the drainage in that eye. Instead of upping her dose to 1ml their upping it to 1.2ml 3 times a day to try to get it under control since shes still at risk for loosing vision in that eye. Nevaeh may also be having night terrors or problems with her blood sugar being to low so Dr Haggstrom wants me to monitor her closely. On a good note baby girl has finally gained weight and is now 17lbs!!!! If she handles.her propranolol well at this dose we go back to Rileys in 2 months for a measurement and check up. continued prayers would be great. Her Dr said this is going to be a long term treatment with her and only time will tell how good it gets.Devin Packnation Henning
Posted on: Fri, 29 Aug 2014 18:01:06 +0000
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