Update on bone marrow results.... Results came back NEGATIVE!! Great news for us but adds some complexity to the overall treatment plan for Carly. Bone marrow biopsies are samples taken from 2 locations and they could positive one time and negative another based on position and location of where the biopsy is taken. With this evaluation of CT scan, MIBG scan, and bone marrow biopsies all being negative, she now does not qualify for St. Judes GD2NK study. We have sent messages to Baylor-Houston to determine eligibility based on results as she could potentially hold out for their enrollment but only if she is eligible based on her status. Because her chance of relapse (aggressive) is so high having been diagnosed high risk stage 4 and because we know she still had Neuroblastoma cells in her marrow in June, her oncologists are leaning towards Carly undergoing some chemo options at St. Jude to target her bone marrow to keep her status stable while we wait for enrollment into the T-cell trial in Houston. We will see what response we get from Baylor and then collaborate with St. Jude on final decision. This is all so complex. It sure would be easier if there was a standard treatment to be followed by all. Continued prayers as we work through all of the details but be sure to thank God for our blessing we received today!
Posted on: Sat, 09 Aug 2014 03:36:20 +0000
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