Update on gabby today her EEG hasnt changed so they upped her medicine. Cincinnati is gabbys second home now she will be here at least one week a month she will not be sitting up or reaching other milestones until after she is over a year old I know god has the final word on this! But with everything that is wrong its looking more on the negative side. She will have seizures the rest of her life the genetic team sent her for over $11,000 in test today an we were told that insurance may not cover this but they need to try to find if there is a genetic disorder there also. Durning her blood test that took us 3 hours to finish she was stuck six times by a vascular team her blood clotted as hard as a rock as soon as it would come out so they are wanting that checked, she goes tomorrow for a liver/ kidney ultrasound. An she has to see a team to get her started on special medical equipment for the home like bath chair a special stroller an other items... Then they are sending ear to eye an specialist because her eyes are crossing an they dont believe she is hearing. Please keep us in your prayers as we go through this hard time an for the kids who cant be here with her
Posted on: Wed, 10 Sep 2014 21:46:10 +0000