V mesecu septembru načrtujemo srečanje, ki bo ob enem tudi - TopicsExpress

V mesecu septembru načrtujemo srečanje, ki bo ob enem tudi sestanek oziroma ustanovna seja za ustanovitev društva. Datum smo si zamislili nekako 7.9.2013 nekje v zgodnjem popldnevu, v Ljubljani. O podrobnostih sestanka ( lokacija, ura itd ) - srečanja vas bomo obvestili tudi na strani. Na srečanje - sestanek ste vabljeni vsi pacienti, ki bolehate za Marfanovim sindromom, starši otrok oziroma skrbniki in ostali družinski člani obolelih. Veselimo se srečanja z vami, ter upamo na uspešno izvedbo le tega. PS: če bi kdo želel biti obveščen po elektronski pošti lahko piše na : marfansindrom@gmail Lep pozdrav, Marfan syndrom Slovenia ( EU )

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