Virginia says: Ftm to a beautiful 8 month old. I just learned - TopicsExpress

Virginia says: Ftm to a beautiful 8 month old. I just learned my little girl has nystagmus caused by albinism. I only know that means she cant control her eyes moving the way they do; I feel so bad that I dont know how to help her. We are moving out of state soon so shell have a different provider and someone else will be doing her genetics testing. What sort of questions should I ask? I have a ton of questions and no idea how to ask them when Im in the office. Have any of you had to deal with nystagmus and/or albinism with your child? Whats it like? Do you think school will be hard for her? What could I do to help her? Please help this is new for my family so they are more clueless than I am.

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