WARNING: long post. This video gives basic information on the type - TopicsExpress

WARNING: long post. This video gives basic information on the type of rickets that runs in my family. We (me, my son, and my nephews) deal with this everyday. We have all had numerous surgeries, dental issues, and hearing problems. I dont post much about the struggles related to this disease. In fact, just last week I had to have an emergency oral surgery because of an abscessed tooth. I fight every day to get up and move around because of issues that are not listed in this video - extreme lethargy, bone pain, and muscle weakness. I try not to complain and instead I try to educate myself on the best ways to manage this disease. I am thankful every day to be with someone that has taken his time to understand the problems that go on within my body. I am also so grateful to my parents, Terry and Patricia , that have stepped up to the plate so that my nephew can and has received the treatments he needs.

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