We are excited the launch the 1st annual VEPTR awareness day campaign alongside our partners the Chest Wall and Spine Deformity Research Foundation, and the Jeune’s Syndrome Family Foundation. Both organizations like the Room to Breathe Foundation serve the VEPTR community on a daily basis on both the Front lines and behind the scene. We are hoping to have term VEPTR in every home by the time the next awareness day comes. At this time we would like to thank the late Dr Melvin Smith, and Dr Campbell for their invention that has saved over 500 lives, and that number grows daily. The goal of the 1st annual awareness day is to boost awareness for the Vertical Expandable Prosthetic Titanium Rib, but also garner help for VEPTR children, and organizations like ours who help these children. Please visit veptrday.org to download our VEPTR awareness day poster. Sign our new petition. Or use it to share with family, and friends to introduce them to the VEPTR world.
Posted on: Thu, 01 Aug 2013 01:16:06 +0000
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