We are finally back at the Ronald McDonald House after a very long day. We arrived at Sloan at 10am, but didnt actually get started with treatment until 3pm. The pain usually doesnt start to catch up to him until the end of the infusion and lingers for awhile after. Today the pain started in his arms, then moved to his chest and hands. Once again, he was covered in ice packs except on his hands due to it effecting the reading of his heart rate. His heart rate went up and blood pressure dropped requiring a bolus of fluids. Wes had one rescue of dilaudid and was out. Around the time we were getting ready to leave, nausea stopped by for a visit causing him to vomit. He is now asleep on the couch. I tried to go downstairs for dinner but it was just overcrowded, no room to hardly move around, and because it is western night, the music is loud. Wes hates when it is loud. I just wasnt in the mood so I am back in the room deciding what we will eat and will soon start my own statistics homework. Dr. Kushner decided they want Wes to remain on this clinical trial for as long as he can which is either the full 20 cycles (Wes is on cycle 4) or until he is HAHA positive. This could be a long road. Our next cycle is scheduled for the Dec. 8th.
Posted on: Mon, 03 Nov 2014 23:42:38 +0000
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