We are now at 21% of our fundraising goal and only have 9 more - TopicsExpress



          

We are now at 21% of our fundraising goal and only have 9 more days of our Indiegogo Campaign in which we are trying to raise $10,000 for printing our first Clinical Guidelines for distributing to our Dyskeratosis Congenita &Telomere Biology Disorder families and their physicians. Check out this new video to hear how the Clinical Guidelines will help to support our DCO Families and their physicians. To help with this endeavor, please go to our Indiegogo site at: https://indiegogo/projects/hope-for-rare-disease-1-in-1-000-000-have-dc/x/9045668 #RareDisease #DyskeratosisCongenita #Indiegogo #TelomereBiologyDisorders #AplasticAnemia #FamilialPulmonaryFibrosis #InheritedBoneMarrowFailure #Hope #ClinicalGuidelines #Fundraising
Posted on: Tue, 06 Jan 2015 18:34:20 +0000

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