We have finally heard back from Boston. They are tentatively scheduling us for the first week in November! The Doctors are going over his chart and deciding how much time and what tests are necessary. We should find out exact times and dates by Friday! Excited and nervous at the same time! Weve never flown with kids before or feeding tube supplies so this will be new! Tomorrow we have a 24-48hr EEG. Okley has had some weird blinking episodes where he rapidly blinks over and over and we are ruling out seizures. : ( he gets to wear it home, we will see how this goes... Other than that, weve stayed out of the hospital for almost a month! Go us!
Posted on: Tue, 07 Oct 2014 02:42:56 +0000
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