We have had Jaxs oxygen turned off today, but have kept his - TopicsExpress

We have had Jaxs oxygen turned off today, but have kept his monitor on. He has been staying in the 98-100 so I took off his cannula and we busted out our room. At the RM house you cant eat or drink in your room so you can imagine how trapped we feel when we are by ourselves. (Even at home we cant move around with him just a few feet because of the oxygen machine and both monitors.)He was being fussy so we came to the sun room! Its awesome just being able to move room to room with him!!! Huge deal! I love telling him about everything that we see!

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