We r needing prayers for my son Devin. Some of u know a lot about my sweet baby boy . He has dystonia dyskensia quadriplegic cp and severe epilepsy , refractory seizure and eses at night. He has had been having bowel issue for the last several months, mainly constipation . We have been in close contact with St. Louis about all of these issue and following all of their instructions . What they have been telling us isnt working and I know something is wrong. His seizure activity is on the rise , more frequent and longer. He isnt acting like himself at all. I had his primary do X-rays and I had the report faxed to his gi in St. Louis . It said ileus of the colon and possible chilidaiti syndrome. I have looked these up and Im really scared and Im waiting on St. Louis to call back. They better admit him and find out whats going on!
Posted on: Tue, 16 Dec 2014 18:15:35 +0000
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