Well I didnt walk out today with the answers I was hoping for... - TopicsExpress

Well I didnt walk out today with the answers I was hoping for... my case is so rare there are few studies and no cure nor do they know what causes these tumors in my knee to grow. After several surgeries it is clear that this is not working and the benign growth continues to grow... I will now try a 3 month trial of a form of chemotherapy in hopes to slow the growth of the tumors and pray I will not have to experience the negative side effects of the chemo. In 6months to a year they will start a world wide study in hopes to find a solution for this disease and I will be able to be part of this study.

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