Well, its been a while.Mourning still the loss of my very special doctor, Nadia Ramdin whom I have trusted for eight years.....trust is the key to a relationship with any professional , especially a doctor. And so we try to move on. The following is a narrative listing what I have been told and what I have experienced. Sterioids are pesky and cause me to stay awake for up to 48 hours with no struggle, happy, and busy like a bee on a treadmill. The other medicines and chemo have given me rashes, chips or hold in a couple bones, most important the spine, leached lots of calcium which has demanded I take great fistfulles of suppliments of calcium and vitimine D, peed out buckets of magnizium which has forced me to take diaraher sp, causing replacements and am thankfully back to almost normal, slushy film over the eyes at a particular time after treatment, sores in the mouth, leaky bladder (so much fun) , Very few aches or pain....just a catch one or twice during the day, no energy, taste is off but not bad. Great for dieting. Loss of balance often after infusion....a three hour job if nothing is added like magnizium or blood., Little strength but enough to do a few chores, walk the dogs, do a washing once a week, and cook a meal or two for Marilee and I. Still not feeling sick or bad. The no throw up pills are great....what they give me at the clinic, and what I have here at home. I think there is no way to sum it all up. The clinic staff is knowledgeable and kind. Cant ask for for. They are very careful to cover all bases and seem personally interested in my progress. I will have an appointment with Dr. Ramdin in the middle of October as she will leave the practice and clinic on the sixth of November she said way back.....the day she brought the lady back for brain surgery at Maine Med. Oh the outcome was wonderful.....new life for that lady....new journey for my missy Ramdin. My disease will probably go into remission for a time here and there and the treatment will journey on as is until something is discovered to shorting the times of active disease. Hopefully I will be kept from growing tumors on any body part that is bathed or fed with blood as the M-protein tends to open that door forever. I am sure I will have several bonemarrow biopsys....I say this because it is the only aspect that gives me noticable pain. Legs see painful to touch. Several ideas come to mind. Cellulitis is foremost. I will be getting into a discussion about that. I think an antibiotic will help that out. But I turn over in my mind.....how many more medicines can this ample body take. Oh well, I just keep moving along. Not discouranged really, tired a little of being tired. Like the variety and change so thats an up side, the future looks as though it has a chance to improve and so whats to complain about at age 71 already. Take care all. Hopefully I will have banner news for you the next time I feel prompted to write. I would like it if this helps you all understand an aspect of having and being treated for cancer of the blood. A good life is all about understanding. God gave us all we need to travel this journey and it is up to us to use those tool and insight to carry on and be grateful for what we were given to survive best and meet him with joy.
Posted on: Tue, 30 Sep 2014 05:58:52 +0000
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