Well, there has been a lot happening since our last post. Lara did not end up getting a PEG. The surgeon came in last Monday and advised, that in his opinion for Lara the risks of inserting the PEG outweighed the benefits of having the surgery...so at the moment, she is not getting one (though I have learnt, things can change in a matter of minutes)!!!! The plan going forward in relation to Laras kidneys, is to have her go to the day ward 3 times a week to get 10 hours of IV fluids. On Tuesday night, Laras blood pressure went up and her heart rate increased a fair bit. This has been problematic for Lara all week. She has had a chest x-Ray (which was clear) and an echo (which is an ultrasound on the heart). The echo showed that she has some fluid on her heart and that the heart wall has thickened (which is due to all the medications and circulating blood at a higher rate). Lara was put on two more medications to help with this and it will need to be monitored closely for a while. We are hoping that we will be discharged on tomorrow....but we will just wait to see what happens. We had some upsetting news during the week. One of our hospital families found out that they had relapsed. They had celebrated the year anniversary of their sons transplant just two weeks earlier. Now they have to go through the whole transplant procedure again. Our love and thoughts are with them every day.
Posted on: Sun, 09 Nov 2014 21:08:41 +0000