Well this has definitely been the hardest week since being home. Justice had a really hard time with the Dex making him super lethargic. We started the week off in the ER as he wouldnt even rouse enough to eat. So far so good with all his blood work, but he is so tired all the time and so sad. Last dose of the dex was last night and already we are seeing a bit of an improvement as he is using his words again rather than just little grunts with his su su in his mouth. It was SO hard giving the dex twice daily to Justice knowing the effects it had on him. Luckily we are done with it for a few months. So thankful for all the hospital staff who make our trips in so pleasant. Everyone has been just so amazing!!
Posted on: Fri, 28 Nov 2014 06:12:44 +0000