Well weve just got back.. I wish I had news but I havent, custards notes were not sent over and when they finally got them there was nothing to report as no ones looked :-(.. I honestly dont understand why it happens to custard but after 1hr long discussion the big boss was bought in.. it has been decided that custard needs to be admitted for more extensive tests, genetics, spinal mri, head mri, never conduction again and possibly nerve and muscle biopsys the list is so long I cant remember, my heads spinning :-0 To put it simply..they have absolutely no idea whats going on..hes not textbook hes complex and they need to start again, its far more serious than I first thought and not something thats presented itself in this way before.. The consultant is going to phone me as soon as he has things in place but for now were back to the waiting game not knowing if custards going to deteriorate in the mean time xxx Thank you to all thats messaged and sent texts ect today..it means so much.. we will get to the bottom of this but today was not the day :-( xxx Verdict- still undiagnosed x
Posted on: Thu, 28 Nov 2013 16:51:10 +0000
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