Were off for a fluoroscopy this afternoon so currently nil by mouth. Today we are not only struggling to maintain a decent heart rate were also struggling to keep a decent blood pressure, so cardiology have been notified and if he continues he will need to be reviewed later by them :-0 x They are adament now that is autonomic nervous system is really playing up causing his heart to shunt the wrong way and therefore he struggles to get the blood to pump around his body hence the low oxygen levels. We have had every test under the sun and almost used up there budget, as more tests to come over the next week or so with many results still not in. Theres not an inch of this little boy that hasnt been investigated, but still a diagnosis is yet to be reached. They are still hoping a test result shows something up.. but until then close monitoring and a level of oxygen is required to keep him going. There is talks of a new medication but at present they are holding off for answers. Ill update more after the fluoroscopy much love xxxx
Posted on: Thu, 31 Jul 2014 14:00:30 +0000
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