Weve had an uneventful day. Tylers primary pulmonologist came in & - TopicsExpress



          

Weve had an uneventful day. Tylers primary pulmonologist came in & was heartbroken that we are here again. (Hes def not the only one.) Hes puzzled as to what is causing these issues. He said that Tylers lung reserve is getting worse & worse. Theres not much we can do except expect things to get worse especially with every cold/bacterial infection that he gets or asthma attack. Tylers blood pressure is creeping on the high side now & his heart rate is lower. Lol. Hes not sure what kind of curve ball he wants to throw at them this time. He is breathing hard again, so we had to go up on his oxygen a bit. We are kinda tweaking a few things to see what is going on. He hasnt rested much today for very long. He was up early this morning, & he has cat-napped only a couple of times. I just turned off the lights & tv to see if I can get him to go to sleep. I do have some good news!! The echocardiogram didnt show any changes with his heart. His doctor had bet the ranch it would be a lot worse because of his lab work being so bad yesterday. Well take anything positive at this point. They will be rechecking everything in the morning. Other than that theres not much to report. No news is good news!
Posted on: Tue, 03 Jun 2014 19:21:57 +0000

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