What it is like to have Rett Syndrome. It is a fact of life for these girls and their families every day: This is written by a 19 year old girl with Rett Syndrome: "Think of yourself in a cage, in a room full of people, and the cage is soundproof. You feel uncomfortable and want to ask a question. Think about how frustrated you are when NOBODY hears you. No matter how loud you shout your request inside your cage, no one in the room hears you. Now IMAGINE instead of a cage you are trapped in your OWN body. That is my life, it is Rett Syndrome." Find out more at: IRSF - International Rett Syndrome Foundation
Posted on: Tue, 08 Oct 2013 15:14:08 +0000
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