What we have hoped and prayed for over the last 17 years has come - TopicsExpress



          

What we have hoped and prayed for over the last 17 years has come true. A genuine effective treatment for our sons Cystic Fibrosis. Kalydeco was approved by the FDA today to treat R117H which is the specific mutation that Nat Gallen has. Thanks to all of our family and friends who have supported us through 16 Great Strides events and many other fund raisers. Money buys science and science creates treatments. There are many people with CF who have mutations for which there is still no treatment so we will continue to climb mountains and host walkathons to raise funds and awareness and ask for your support. Tonight we are
Posted on: Tue, 30 Dec 2014 03:00:26 +0000

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